Almost 80 walkers were expected to take part in the second annual Team Hope Walk in Morgantown on Sunday. It's held to raise much needed funds and awareness for the Huntington's Disease Society of America.
“It's a rare disease so not a lot of people know about what it is,” said Shawn Supers, of Huntington's Disease Society of America.
Huntington's Disease is a rare neurological disease. It affects 30,000 Americans everyday, and another 200,000 are at risk. Symptoms range from depression to uncontrollable bodily movement.
“It's actually been said that Huntington's Disease is like having ALS, Alzheimer's, and Parkinson's simultaneously. It's a really intense disease. It is fatal unfortunately,” said Supers.
“I've lost two brothers and my sister passed away three years ago and our father passed away 30 years ago, and we didn't know we had Huntington's in the family,” said Kathy Savage, who organized the Team Hope Walk.
This year's walk also included raffles and other fundraisers, with all of the money going to improving the lives of those with Huntington's Disease, and finding a cure. Most needed now is awareness, especially for support groups in the area.
“Basically just to give support to the people who have HD, those at risk,” Savage said.
As of the start of the walk they had raised about $6,000 so far and more donations just kept coming in thought the day. Organizers are very confident they've reached their $8,000 goal, but they won't know until this week until they calculate the grand totals.